Sorry for my very lengthy silence everyone but life chez EDU has been eventful and internet signal variable so I’ve not been able to blog. Today in sheer boredom I downloaded wordpress for my Blackberry which has better 3G than my ipad so here I am! This post may take a while as I try to fit everything in.
As you can guess I’m still in the EDU, it’ll be 10weeks on Thursday (yikes that’s tomorrow) since I was brought here. 4 weeks or so ago they got a Compulsory Treatment Order meaning they can keep me in hospital for up to 6months pending my progress. They say I’m doing well in that I’m doing a lot of psychological work but physically well… I gained a small amount of weight then yesterday dropped to within 0.4kg of my original weight and therefore stand to lose my privileges of walks and time out even though the weight loss was totally not deliberate. Stupid body doing stupid things! Managed to negotiate a lower target BMI of 15 and now I’m failing to even maintain that.
I am still solely tube fed. We did try solid food on Christmas Day which sent my digestive system into some sort of paralysis causing agonising pain and vomiting so back to the tube again. I’m on an NG feed now having removed my PEG with a pair of scissors around 6 weeks ago. Not the cleverest move I’ve ever made but the nurses fought my corner in not having it put back in. My consultant wanted it to remain in place for a year after I left here and I didn’t want that at all so I took things into my own hands and that was that. They could have forced the issue and made me have it back in but they could see I’d just keep on removing it. The NG will be removed as soon as I’m on a totally oral diet. God knows when that will be!!!
The good thing is even under section they allow some degree of freedom so I got home for 2 nights over Christmas. I hope to go home again over New Year. I also get two walks in the grounds a day, time out with my friend C when she visits several times a week and time with my parents at a weekend. This may change now with my weight loss 
The staff also make the effort to take us out whenever they can. Us being the 3 adult patients as the unit is going through a very quiet spell at the moment.
So there we have life as it stands at the moment. I look forward to catching up with my regular blogs now I’m back online xx
December 28, 2011 at 10:04 am |
Oh I’m so glad you’re okay. The lengthy silence had me concerned.
It sounds like the unit isn’t too bad (for what it is), and that you’re trying really hard which is wonderful. Though the Compulsory Treatment Order is scary shit
Thinking of you x
January 8, 2012 at 7:28 am |
Glad to see you back posting. I’ve been thinking of you.